Family of Girl With Rare Condition Urges House to 'Believe in Gianna,' Help Raise Awareness of Sanfilippo Syndrome
February 21, 2024
February 21, 2024
JEFFERSON CITY, Missouri, Feb. 21 -- The Missouri House issued the following news:
The family of a little girl afflicted with what is sometimes called "childhood Alzheimer's" is asking the legislature to make her birthday a day to raise awareness, to thereby improve the lives of other children faced with this rare condition.
Gianna Marie Wacker wasn't expected to live past her early teens. When she sat with her family in a House committee hearing las . . .
The family of a little girl afflicted with what is sometimes called "childhood Alzheimer's" is asking the legislature to make her birthday a day to raise awareness, to thereby improve the lives of other children faced with this rare condition.
Gianna Marie Wacker wasn't expected to live past her early teens. When she sat with her family in a House committee hearing las . . .